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What you won’t hear during Breast Cancer Awareness month

Posted on September 30, 2015 by cgirl Posted in breast cancer, breast cancer awareness month .

There is no good time to receive a breast (or any) cancer diagnosis, but the worst time is during Breast Cancer Awareness month. That’s what happened to me, and I was reminded of this when I started to hear all the promos on the morning televisions shows recently (late September) for the many “pink” and “pink power” events they have planned for this October. The Today Show will be treating some “lucky survivor” to an ambush makeover….ABC News is “Going Pink”… and companies will show their good will with a slew of promotions, such as Ford’s “Warrior in Pink” giveaway.

© Can Stock Photo Inc. /4774344sean

© Can Stock Photo Inc. /4774344sean

First, the disclaimer: Yes, I am grateful as someone who has had cancer that my particular brand gets all this attention, and I feel for all the people with every other kind of cancer around which there is much more silence, much less media attention — which in turn, must mean much less support for the bigger issues of cures or of aiding those who cannot afford testing and treatment. I am grateful to the activists who began to broaden the conversation around breast cancer and push the medical and research agenda. I was a part of that movement long before my mother or I was diagnosed, writing about breast cancer for national women’s magazines and working with the New York organizers for the Revlon Run/Walk for women’s cancers in the late 1990s.

Breast cancer organizations and programs all do important work, and every woman diagnosed in recent years has benefited from their efforts. But right now, as every organization and media outlet gears up to “celebrate” or participate in breast cancer awareness month, thousands of women are hearing the word “breast cancer” in the same sentence as their name for the very first time, just as I did two years ago.

Before my diagnosis, I would have thought that Breast Cancer Awareness month would be a comfort to the newly diagnosed. I cannot speak for everyone, but for me it most definitely was not. Yes, again, I am grateful for the activism; but the conversation around Breast Cancer Awareness month is singular – it is about surviving, triumphing, and beating/curing cancer. It is not about coping with or navigating cancer’s emotional impact. So right now, some woman just like I was is in shock. She is numb; she has had her world transformed from a sense of surety to a sense of complete uncertainty. Her body has betrayed her. In an instant, she has felt isolated emotionally and psychologically from everything she thought she knew and especially from the people she loves, who cannot be in her shoes, cannot relate to her journey, unless they, of course, have had cancer, too. Continue reading →

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Tags: breast cancer awareness month, emotional scars, isolation .

Not as young as you feel…or as old, either

Posted on September 12, 2015 by cgirl Posted in breast cancer .

I like to think of myself as a young woman. I have a youthful spirit, I dress young, and no one ever guesses my age correctly (always thinking I am 5-10 years younger.) For years, as the numbers crept well above 40, I convinced myself the digits didn’t matter. After all, my sister died unexpectedly at age 30, so every year I have lived past that seems like a gift. Plus, I felt 37, so I told myself that I was in fact 37 in all the ways that mattered.

Until I heard the word cancer, and I couldn’t lie to myself anymore.

young-690958_640 (2)It was like the universe chuckled back, “Nope, you’re most definitely 51.” I got the punch-line; I had a 51-year-old’s illness. I went back to thinking of myself as 51, only this time, I felt 80. The word “cancer” adds a certain sluggishness. You drag yourself out of bed, you wonder how much time you have left, and even if you turn out like me, to have a pretty good prognosis, you still become incredibly – possibly excessively – aware of time (how much has gone by; how little you have left, what you want to do with it.) In real estate, when you buy a house that’s worth more than you paid, they say you are “up-side right” in the deal. In cancer, when you are past middle age, you’re definitely “down-side wrong.” What I didn’t want to do was waste one single second. Continue reading →

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Hair-y questions

Posted on July 15, 2015 by cgirl Posted in breast cancer, hair .

A decade or so ago, in my journalism days, I interviewed a 22-year-old woman who had just been diagnosed with breast cancer. As shocked and saddened as I was to see such a young person facing what we often assume is a mid-life disease, I was even more surprised when she told me that she worried most about losing her hair. Not her breast; her hair.

I have thought about this young woman a lot over my pre-breast cancer years, trying to sort out whether, if I were in her situation, the loss of my hair or my breast would bother me more. I admit it: I was a late bloomer – didn’t see much in the way of breasts until my early 20s, and really, the big “growth spurt” didn’t come until my 40s. In the meantime, I had gone through adolescence refusing to look at my flat, “boy-body” in a full-length mirror, uncomfortable with what I saw as my lack of femininity (aka: curves). I only got over this when I heard boys making vulgar comments about a friend’s voluptuous form and what they’d like to do with it, just minutes after appearing to be polite and friendly to her. That day, I decided being small was a virtue. Still, as any woman will tell you, breast development is an important part of our sense of body image as we evolve from girlhood to womanhood.key-692199_640 (2)

At the same, though, I love my hair. Ok, that’s not entirely honest. I, like many women, have a love-hate relationship with my hair. Hate, in that its tendency to frizz makes me crazy. Love, in that when it comes out right, it makes me feel on top of the world. Powerful. Beautiful. My hair is my mask, my armor; it gives me the confidence to brave the toughest day.

The question of which would be harder to lose – breasts or hair – became all too real for me when I received my own cancer diagnosis. I wasn’t ready to give up either. But the odd thing was, I actually felt like I had more control over whether to keep my breasts. Continue reading →

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Tags: breast cancer .

Welcome to the “club”

Posted on July 7, 2015 by cgirl Posted in breast cancer .

Cancer – when I first heard the word, this was my fear:

It wasn’t that I might die – although that was certainly swirling around in my brain. Some more logical part of my mind understood, though, that even if my case were bad, death wouldn’t be imminent. There’d be surgeries to try, medications, chemo, radiation….lots of measures before, well…before the big fear ever became a reality. At a minimum, I had a few years.

No, what immediately went through my mind was the slippery slope. I feared entering “cancer world,” seeing my life people-308531_640 (2)transformed from something I thought I directed, to something cancer dominated. Before, I worried about my goals and how to get there — my writing, my activism. In the limbo after hearing that word in the same sentence as my name, I feared a life where every day began and ended with what to do about the cancer, what stage I was at, and the best way to treat/fight it. I feared that everything I once valued or thought important would be hiding in the shadows of this fight for my life. I wanted to keep everything as it was and put the illness in the shadows. Just deal with it like I might a cold or the flu, and then “get back to normal.” Continue reading →

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Tags: breast cancer, Cancer Girl, community .

Don’t rush me, I’ll get there….

Posted on June 18, 2015 by cgirl Posted in breast cancer, survivor, trauma .

The day after my final radiation treatment, a dear friend said, “Now cancer is in the rear-view mirror.” She meant well, and having been through a (different) cancer of her own a few years earlier, she was drawing from her experience. A pragmatic soul, when her treatment was over, she simply put it all behind her. But I remember feeling my whole body clench at her words and something a bit like anger well up inside me. “Not yet,” I replied.

“But it’s done now,” she said. “You’re a surv….”

“No,” I cut her off. “Don’t say it. Don’t say I’m a survivor. I’m not there yet.”

sunset-401541_640 (2)There is a tendency to fast-forward those of us with cancer to the other side, to race us from the afflicted to the well again. On some level I get it – cancer is such a scary illness with so many possible outcomes that loved ones want us to return as quickly as possible to “healthy.” They want that “happily ever after.” Trouble is, for those of us with cancer, the scars are more than physical.

Continue reading →

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Tags: breast cancer, emotional scars, survivor .

“Cancer Girls” — Made, Not Born…

Posted on May 14, 2015 by cgirl Posted in breast cancer .

There have been times in my life when, like it or not and beyond my control, my identity was reduced to a single fact:

  • the girl with the dead sister
  •  the girl who lost the love of her life
  •  cancer girl

From the moment others learned of these events, in their eyes I was transformed, flattened from a multi-dimensional, sometimes larger-than-life person to tbench-605957_640 (2)hat one single fact. I could tell it was happening by the all-too-earnest, searching expressions –“Oh my God. How will you survive this?” — I saw when I told people what was going on with me. Vanished in an instant was all that had come before, all the other qualities that made me me — the fearless writer, passionate activist and champion of all causes, the confidante, lover and friend.

I was now Cancer Girl. Continue reading →

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“I just knew….”

Posted on May 7, 2015 by cgirl Posted in breast cancer, intuition, mind-body connection, second opinion .

What happened to me is not unusual – not just the cancer (one in eight women will get breast cancer over the course of her life), but also that I had known for months that something wasn’t right in my body. I didn’t know what it was. I actually felt fine in a medical sense, yet I knew something was off. When friends would ask how I was doing, and I’d say, “I know this sounds strange: I’m fine, but I think I’m not. I have this sense that something’s going on inside me.”

As it turns out, this isn’t that uncommon. Actress Rita Wilson, recently on the other side of her own bout with breast cancer, said she knew something was wrong even though her test results said she was fine. She got a second opinion: it validated her instincts and found the cancer in time for her to receive treatment and a good prognosis. (I shudder to think what would have happened if she didn’t trust her gut and schedule that second visit.) Continue reading →

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Tags: breast cancer, intuition, mind-body connection, Rita Wilson, second opinion .

What aren’t you saying about life with cancer?

Posted on May 1, 2015 by cgirl Posted in Purpose, Welcome .

I have kept a diary since I was a kid. It hasn’t always made me popular – like when some of the men in my past decided to read it without my permission (and didn’t like what they found there). writer-360790_1280 (2)But my diary has always been the one place where I feel free to fully express my deepest thoughts, my darkest fears, my intense confusion and my secret hopes. When times are good, I don’t write; when times are confusing, painful or marked by rare joy, my diary helps me make sense of it all.

So, when breast cancer hit me, my diary took on a new importance. From the moment the word “cancer” was said to me, I felt distance between myself and those around me – even those I loved most. When you face such a diagnosis, there are things people want to hear you say, want to believe you are thinking, and then, well, there are your actual thoughts. The two are not often the same. My family and friends wanted to hear me stay positive, wanted to hear me fight. I did fight, I was fighting, but I also felt weak, angry, terrified, and alone. So very alone. How could I explain that to the people who thought they were right there with me? How could I tell them that all the love in the world – though very, very appreciated – didn’t make me any less alone because cancer divides the sick from the well, divides those who recognize (almost daily) their own mortality from those who hardly think about it at all. Continue reading →

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Tags: breast cancer, community, deepest thoughts, diary .

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